{"id":1797,"date":"2024-07-14T19:14:46","date_gmt":"2024-07-14T17:14:46","guid":{"rendered":"https:\/\/polyrene.fr\/publications_science\/etiologies-co-morbidities-and-causes-of-death-in-a-population-of-133-patients-with-multiple-disabilities-treated-in-specialized-follow-up-care-and-rehabilitation-centers\/"},"modified":"2024-07-14T19:14:46","modified_gmt":"2024-07-14T17:14:46","slug":"etiologies-co-morbidities-and-causes-of-death-in-a-population-of-133-patients-with-multiple-disabilities-treated-in-specialized-follow-up-care-and-rehabilitation-centers","status":"publish","type":"publications_science","link":"https:\/\/polyrene.fr\/en\/publications_science\/etiologies-co-morbidities-and-causes-of-death-in-a-population-of-133-patients-with-multiple-disabilities-treated-in-specialized-follow-up-care-and-rehabilitation-centers\/","title":{"rendered":"Etiologies, co-morbidities and causes of death in a population of 133 patients with multiple disabilities treated in specialized follow-up care and rehabilitation centers"},"content":{"rendered":"<p>Rousseau MC., Mathieu S., Brisse C., Motawaj M., Grimont E., Auquier P., Billette de Villemeur T.<\/p>\n<p>Brain Inj. 2015;29(7-8):837-42. doi: 10.3109\/02699052.2015.1004757. Epub 2015 May 7. PMID: 25950262.<\/p>\n<h2>Mediation\/Education :<\/h2>\n<p><span style=\"font-weight: 400;\">This study was carried out in two follow-up care and rehabilitation centers specializing in polyhandicap, on a population of patients with severe polyhandicap, defined as severe intellectual and motor impairment. This is a retrospective study whose parameters were collected from the medical records of 133 patients followed at these two centers and who died between 2006 and 2012.  <\/span><\/p>\n<p><span style=\"font-weight: 400;\">The aim of the study was to gain a better understanding of the causes of death in these patients, by providing information on the etiology of polyhandicap, comorbidities, length of hospital stay, causes and place of death.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Out of a population of 712 patients with severe polyhandicap cared for in two specialized follow-up care and rehabilitation centers between 2006 and 2012, 133 (19%) patients died during this period.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">There was an even split between children and adults.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">The majority were men (63.2%).  <\/span><\/p>\n<p><span style=\"font-weight: 400;\">The average length of stay in these institutions was 10 years 4 months.  <\/span><\/p>\n<p><span style=\"font-weight: 400;\">The average age of death was 21, and in 60% of cases, the place of death was a specialized rehabilitation center (often at the request of families), followed by the emergency room (31%), home (6%) or a medical-social facility (3%).<\/span><\/p>\n<p><span style=\"font-weight: 400;\">The causes of death were, in descending order:<\/span><\/p>\n<ul>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Lung infections (63.2%)<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Sudden death (18%)<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Status epilepticus (6.8%)<\/span><\/li>\n<\/ul>\n<p><span style=\"font-weight: 400;\">With regard to comorbidities, the most frequent in descending order were chronic respiratory insufficiency, digestive pathologies, drug-resistant epilepsy and severe scoliosis.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">The main etiologies of polyhandicap were: perinatal encephalopathies (31.6%), metabolic encephalopathies (18%) and epileptic encephalopathies (11.3%).<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Respiratory disorders are both the main comorbidity and the main cause of death in patients with severe polyhandicap, and are favored by digestive disorders (GERD, false routes), thoracic deformities and seasonal viruses. Prevention (vaccinations, respiratory physiotherapy, etc.), adapted nursing care and medical care aim to stabilize health and avoid further handicaps.<\/span><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Rousseau MC., Mathieu S., Brisse C., Motawaj M., Grimont E., Auquier P., Billette de Villemeur T. Brain Inj. 2015;29(7-8):837-42. doi: [&hellip;]<\/p>\n","protected":false},"featured_media":0,"parent":0,"template":"","keywords":[61],"class_list":["post-1797","publications_science","type-publications_science","status-publish","hentry","keywords-mediation-education"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Etiologies, co-morbidities and causes of death in a population of 133 patients with multiple disabilities treated in specialized follow-up care and rehabilitation centers - Polyrene<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/polyrene.fr\/en\/publications_science\/etiologies-co-morbidities-and-causes-of-death-in-a-population-of-133-patients-with-multiple-disabilities-treated-in-specialized-follow-up-care-and-rehabilitation-centers\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Etiologies, co-morbidities and causes of death in a population of 133 patients with multiple disabilities treated in specialized follow-up care and rehabilitation centers - Polyrene\" \/>\n<meta property=\"og:description\" content=\"Rousseau MC., Mathieu S., Brisse C., Motawaj M., Grimont E., Auquier P., Billette de Villemeur T. 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