Introducing the PolyRENE network

The PolyRENE network federates a joint research community focused on Polyhandicap/Profound Intellectual and Multiple Disabilities (PIMD). This research network is aimed at all those involved in the field (research, care, medico-social support, associations and families).

PolyRENE aims to optimize the visibility and care of people with Polyhandicap/PIMD by increasing knowledge of :

  • Epidemiology and characterization of Polyhandicap/PIMD (number of cases, health status, life expectancy).
  • The care pathway for people with Polyhandicap/PIMD, and the obstacles and dysfunctions in this pathway.
  • The experience of informal caregivers (families) and institutional caregivers (carers and other supervisors), and the levers needed to improve this experience.
  • Social representations of Polyhandicap/PIMD.