The PolyRENE network federates a joint research community focused on Polyhandicap/Profound Intellectual and Multiple Disabilities (PIMD). This research network is aimed at all those involved in the field (research, care, medico-social support, associations and families).
PolyRENE aims to optimize the visibility and care of people with Polyhandicap/PIMD by increasing knowledge of :
- Epidemiology and characterization of Polyhandicap/PIMD (number of cases, health status, life expectancy).
- The care pathway for people with Polyhandicap/PIMD, and the obstacles and dysfunctions in this pathway.
- The experience of informal caregivers (families) and institutional caregivers (carers and other supervisors), and the levers needed to improve this experience.
- Social representations of Polyhandicap/PIMD.